Knowledge Item:
CA-Quality of Life and Health-43
Trends in Quality of Life Over the Course of the Treatment
Episode Part IX–Length of Time a Participant is Maintained at the
Same or an Improved Level of Quality of Life
The probability of maintaining an
individual at or above the baseline Total Quality of Life Score was
estimated from a Cox (proportional
hazards) regression or survival analysis.
More than half of the
individuals, in this progressive disease, may be maintained at the same
or higher quality of life for a period of time approaching the maximum
in our evaluation study, of about three years.
Further analyses given in Knowledge
Items: CA-Quality of Life and
Health-37, -42, -50, -51,
and -39, as well as Knowledge
Items: CA-Medical Outcomes-11, -12,
and -13 show
additional analyses that confirm that the projects with wrap-around
comprehensive psychosocial services, supplementing basic medical
services, tend to maintain the patient at the same or an increased
quality of life for a longer time, and with a greater ratio of
improvement, than just medical services. The additional Knowledge Items
use alternate statistical designs and models with different factors
"controlled," but the different methods of assessing the
relative effectiveness of these different types of service models in
achieving improved quality of life for the patients all point out the
importance of integrated psychosocial or "wrap-around"
services.
Mean Days Quality
of Life is Maintained at or Above Baseline Level
[Note: This is a
"raw" mean that does not control for whether the patient was
still in the program on the last day when data were collected. More
complete analyses which do correct for this issue are shown in the
"survival at the same degree of quality of life" curve given
below.]
More Information:
Survival
Function or Survival Curve
Likelihood of
Keeping a Patient at or Above the Baseline Quality of Life Level
Controlling for Initial Level of Quality of Life and Participant
Demographic Factors
Percentage of
Patients with Sustained or Improved Quality of Life Over the Course of
Treatment
In
interpreting this Knowledge Item, and all others in this section on Quality
of Life and Health, remember that the ratings of quality of life,
symptom impact, and healthcare utilization are based on patient self
reports.
Knowledge Item Citation: Huba, G. J., Melchior, L. A., Panter, A. T., and the HRSA/HAB SPNS Cooperative Agreement Steering Committee (1998-2001). Knowledge Item:
CA-Quality of Life and Health-43 from
HRSA/HAB's SPNS Cooperative Agreements on Innovative Models of Care, The Measurement Group Knowledge Base on HIV/AIDS Care, Online at www.TheMeasurementGroup.com.
Last Updated:
March 25, 2005; data through June 15,
1999; analyses conducted February - June 2000.
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Knowledge Base Citation: The Knowledge Base and
this Knowledge Item were designed and authored by G.
J. Huba, Ph.D.; in collaboration with Lisa A. Melchior, Ph.D.; A. T. Panter, Ph.D.; and the staff of The Measurement Group. Cite this work as
"Huba, G. J., Melchior, L. A., and Panter, A. T. (1998 - 2001). The Measurement Group Knowledge Base on HIV/AIDS
Care. On the World Wide Web: http://www.TheMeasurementGroup.com."
Questions or
Comments:
Contact The Measurement
Group.
Use of Knowledge Base
Information: Acceptable Uses and
Limitations.
Collaborators from
Participating Projects: Cooperative
Agreement Steering Committee 1999.
Participating
Projects: This Knowledge Base is based on
the service delivery experiences of 27 Cooperative Agreement Projects on Innovative Models
of HIV/AIDS Care. These projects and the Evaluation and Dissemination Center
which produced this Knowledge Base were funded by the Health
Resources and Services Administration (HRSA), HIV/AIDS Bureau (HAB) as Special Projects of National Significance (SPNS)
between 1994 and 1999. Click the Model Programs button
above for descriptions of the projects that contributed to this specific
Knowledge Item, a list of
key staff, and project grant numbers.
Why This Evaluation was
Conducted: Editorial.
More Information: Design
of this Knowledge Base.
Recommended Citation
Format for Web Materials: American
Psychological Association Publication Manual Section, Revised 2001.
Work on the Knowledge Base and the
cross-cutting evaluation was supported in part by Grant Number 5 U90 HA 00030-05 from the
Health Resources and Services Administration (HRSA), HIV/AIDS Bureau's (HAB) Special Projects of National Significance
(SPNS). The contents of this Knowledge Base are
solely the responsibility of The Measurement Group and do not necessarily represent the official
views of HRSA or HRSA/HAB's Special Projects of National Significance
nor may they represent the positions of the individual grantees whose
projects are included in the cross-cutting evaluation.
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