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Appendix B-2
Overall, how would you rate the effect that the
training experience(s) had on how you think about HIV? Why is that?
(Responses Sorted by Rating)
Large Negative Effect "Made It Much
Worse"
Medium Negative Effect "Made It
Worse"
- The disease is very prevalent. It is a condition you can easily
encounter, especially among sexually active youth. 45
Small Negative Effect "Made It Slightly
Worse"
- The information made me more depressed about what's going on with
HIV. 88
Small Positive Effect "Made It Slightly
Better"
- Intuitively, it was stuff I already knew. However, it showed me I was
on the right track to making my program go in the right direction, that is, compatible
with my target population. 1
- I learned only a little bit more than what I already knew. 2
- I have a better understanding of the disease and the medications
available, and the impact of getting education to those who need it. 46
- It just affirmed my existing understanding of the disease. It also
provided new insight regarding the other illnesses associated with the disease. 48
- I was already familiar with the disease itself. I know a lot of
people who have it. The training taught me more about the medications for HIV/AIDS. 58
- I learned about the epidemic increasing among Latinas. 63
- I never had a prior preconception about HIV/AIDS. The social support
aspects presented were new and very helpful in my work for knowing whom to contact for
various social service needs of the patients. 78
- The information was more related to maternal health care for newborns
and pregnant women, but it was still okay. 81
- I gained information about how to approach patients one-to-one. 83
- The information I learned gave me the data to reassure myself that
the feelings I had about the virus were correct. 87
- It seems that they're finding HIV/AIDS more and new developments for
prolonged life expectancy. I understand ancillary services better and I am more aware of
them now and their need among people with HIV/AIDS. 115
- It refreshed my knowledge about what I should be looking at and
dealing with in terms of HIV/AIDS. 120
- Listening to the trainer and talking about it to clients, it made me
look at HIV from a different aspect. I looked at HIV in a new perspective. 123
- I am still very cautious about body sterilization techniques and
coming into contact with substances and things. 126
- It opened up certain questions and inquiries on how to deal with
HIV-positive people. 132
- I was new when I went to the training, so I was a "fresh sponge
getting new information". 148
- The emphasis was put on heterosexual groups. They couldn't answer my
questions about the statistics on African Americans. 149
- It helped introduce me to the anti-retrovirals. 160
- The changes haven't been really that much. There wasn't that much new
stuff. 163
- It made me think more in terms of identifying people who are
HIV-positive and who had not previously been tested, that is the warning/early signs of
HIV. 184
- The things that changed were that I learned the statistics, about the
different strains, and the possible treatments, since the disease is ever-changing. The
training also taught universal precautions, which I already knew. 191
- I already had background knowledge. 212
Medium Positive Effect "Made It
Better"
- Prior to the training, I didn't know the extent to which protease
inhibitors helped people. 6
- I have greater clarity. Learning from the trainer clarified the
difference between dementia and delirium. It increased my understanding of medication and
other issues on delirium. 8
- The questions the trainer asked and the issues about the care she
brought up, for example, the medications, were all valuable questions, and they make you
stop and think about care in a different way. 14
- It increases awareness. I got better overall picture. 35
- There's a high burnout rate for those who put as much time as I put
into the work. It's good to see new blood and talk about your experiences. Its also
good going through role-playing. 36
- I understand more about how to deal with patients with dementia and
their associated behavior. 37
- The trainer had a lot of information about how to care for patients
with dementia. 38
- I now have better information to deal with patients and the issues
they face. 39
- It alerted you to be more aware that people with HIV/AIDS live
everywhere. 41
- The training cleared up some of the myths that I had about HIV/AIDS.
49
- The training was "down-to-earth" and helped me with my job.
It was very understandable as well. 52
- Now, I don't think HIV is as scary for my clients or me in terms of
contracting the virus from casual contact with those with the disease. 53
- Any extra information always improves what you can do. 56
- It just widened the knowledge I had. 57
- It gave me further insight regarding how to deal with women at-risk,
and it taught me how to convince them to get tested, and how best to explain the
importance and results of the test. 61
- I learned more about the statistics and I learned that the types of
people with the disease are different from what I previously thought. I used to think it
was mostly prostitutes and drug users with HIV/AIDS. 64
- It brought up some stuff related to patients with HIV/AIDS that was
"sitting under the desk" that I haven't had the chance to use. 69
- With more knowledge comes more education, which results in an
increased ability to educate others. 71
- It made me more aware of the need to have latex gloves and the need
to take precautions, in general. 72
- It changed the way we view HIV as no longer a terminal illness, but
rather it is a chronic disease that's manageable. 75
- It changed my knowledge about the importance of HIV counseling when
doing testing. 76
- It increased my current knowledge of delirium. 77
- It gave information on better service delivery. 86
- I feel much more informed about HIV issues, although my views about
HIV haven't changed. Ive worked with HIV-positive people for some time now. 89
- I had already had previous training in HIV treatment. However, the
training helped make me more comfortable when providing care to HIV-positive patients. 100
- Ive been dealing with HIV for a long time and I feel that the
information has added to what I have learned in the past. 102
- The awareness brings you to think about the needs they educate you
on. 104
- It gave me more information and I learned how to better hone in on
assessments for HIV and risk factors. 107
- It didn't affect me 100 percent. I am more open to understanding it
but I still have my own viewpoints. 119
- From where I started, I was already open-minded and already exposed,
especially where I am from. 121
- It affirmed what I already knew. 131
- I realized that I could help someone with HIV. 139
- It gave me more confidence in counseling. I am able to talk to
inmates better. 141
- I learned from it, but I don't really know how it affected what I
think about HIV. 151
- Most of the information given was information that I already knew.
The most interesting part was the role-playing. It was helpful because it gave a lot of
information to let us know how to talk to patients, and how to be culturally sensitive.
154
- I remember from the training that when you have tuberculosis, it is
common with HIV. You usually don't have it bilateral; it is usually one-sided. When you
see it multiple, it is a good indicator that something is out of the ordinary. This is
also the case with hairy leukoplakia and those types of things. 158
- It helped me to understand. 161
- It gave me a better understanding of the disease and the disease
process. 162
- The training had different intervention models that gave me ideas for
doing my own program. 168
- They were able to explain the answers to my questions about HIV. It
decreased the reservations I had about dealing with people with HIV/AIDS. 169
- It increased my awareness of the number of youth exposed to HIV/AIDS.
It increased my sensitivity to how to do pre- and post-test counseling. 170
- Im able to help others more effectively understand the process
of the test, that is, what it means to be high positive, and that it's not a death
sentence anymore. 171
- I'm more knowledgeable about HIV/AIDS. 173
- I'm doing a lot more screening and testing. 178
- At first, I didn't give HIV/AIDS a thought. Through the training, I
look at it differently. 186
- I think my thoughts were based on prejudice about the infected. 189
- It gave me a little knowledge about how to properly approach
patients. It's an emotional issue. It provided a sensitive approach. 190
- The more knowledge you have, the more comfortable you are in dealing
with that kind of stuff. 197
- I've begun to accept people with HIV more. I am not afraid of them.
Its easier to work with them and I know they are not going to harm me. 199
- This type of training is what we need more of so we can address
issues of HIV/AIDS with patients in a sensitive manner to try to educate them, so that
they can help us understand what theyre going through and what they need from us.
202
- I was already aware of the HIV situation. This made me a little bit
more aware. 205
- I have been doing it for a number of years. It wasn't really
something new to me. 206
- There were a few things I was not aware of before, for example the
window period is shorter than I originally thought. I originally told patients to come
back in 6 months. Now I tell them to come back in 3 month. Now I know that they could come
back more frequently, which is better for the patients. 213
- I am looking at HIV from a broader level. 220
- I view the disease differently now and I know that there is hope and
a light at the end of the tunnel now for me. 237.
- I am now more sympathetic. Before the training I didn't understand
the capacity of the problem, that is that the disease affects people from all regions and
from all walks of life. 240
- After the training, I concentrated my efforts more on women and HIV.
242
- It increased my awareness of the need for services that are specific
for women with HIV/AIDS. 245
- I feel that I gained more information about dealing with women with
HIV/AIDS. I am no longer prejudiced of people with HIV/AIDS. It helped me to be more aware
of the issues they face. 248
- It is not the minimum positive effect, but it not the maximum either.
It helped but there is still more to learn. Everything was not appropriate for the
community I serve. Some of the issues don't have the participants' interest, for example
homosexual topics. They are women. With some people, if they don't think they need
something, then there is no interest to learn about it. 250
Large Positive Effect "Made It Much
Better"
- I understand dementia a lot more and how it's part of the disease
process. 3
- The uniqueness of the facility the only one in the country
built entirely on donations and provides 24-hours care has allowed for trainings
like these to learn more. 4
- We are more aware. 9
- I am able to pinpoint certain behaviors, and I have the ability to
say that they are part of the dementia-type of behaviors. I am able to identify dementia
type behaviors better for patients care. I know better what's going on. 10
- The perspective the doctor had to offer was beneficial. That
perspective was not available before. 13
- The trainer has now become a medium for information. I have learned
so much from her. She gets her point across very well. 15
- It was a large positive effect because of the education I got behind
it. 16
- We now have a completed HIV program at the hospital. 17
- It gives us practical skills to use and scientific knowledge about
whats going on in somebody's brain. 18
- I am more able to provide appropriate services. 24
- It increased my knowledge. I know better about what's going on in
HIV-positive patients minds. 32
- I was very moved by it. Especially for my unit, it was an important
training. I used to be a case manager and I am now a manager. I didn't want to change,
that is, I wanted to stay in the HIV task force. I don't want to give that up. 34
- I am now more aware of who has HIV and how it is really transmitted.
I now know the truth about HIV/AIDS and its transmission. 40
- I am now recognizing how different medications interact with one
another and the mental status/changes that occur as a result. 42
- It dispelled a lot of myths I had about the disease. It addressed the
issues I had questions about. 50
- I don't know. 51
- It made me more aware of whats out there. I have a better
awareness. 55
- Before I wasn't sure what to expect, but after the training I learned
that they [PWA] are normal and I now feel more comfortable dealing with them. 60
- It brought insight regarding things I should know about patients in
terms of their medical information, such as viral loads and the like. 62
- Because of the information, I gained insight about looking at
patients from their point of view and about informing them of the services that exist for
them. 65
- It made me understand what people with the disease go through and
their great needs that exist. It also made me realize that the disease is not selective
everybody can get it regardless of ethnicity and sexual orientation. It increased
my empathy. 66
- The information was very effectively conveyed and was based on facts.
67
- It gave me background information. The trainers presented themselves
well and they were available to use later. It was informative. The trainers were highly
qualified. 68
- It gave me more tools to work with staff and patients. It helped me
personalize HIV/AIDS-related issues. 70
- It gave me a better understanding of transmission and the necessary
precautions to prevent transmission. 80
- I learned how important it is to prevent the transmission of such a
sexually transmitted disease. I learned of the importance of stressing among Asians in
this area the need to use condoms to prevent not only pregnancy, but also sexually
transmitted diseases. 82
- It helps patients to concretely help themselves and others. 84
- It put a real "face" to AIDS. The general information was
made clearer. It helped me in my job as an interviewer and a counselor. 85
- There was more information provided during the training. With more
information, there is more power. With power, more action can be taken. 97
- When you're asked to sit down for an hour and listen to someone
explain the devastating effect of HIV and what's involved, you feel more directly
affected. It's the casual relationships that are the most dangerous because you don't
think about HIV. The seminar made you think and feel about HIV. 98
- In what I do, I need HIV/AIDS to seem relevant to a particular
population, to have them think they are affected also. They may think they are excluded
from the issue. I have to make it seem more realistic to them. That is what the training
helped me with, that is, the topics to bring up. 105
- It cleared up some of the taboos about HIV and dealing with people
with HIV/AIDS. 108
- Getting the perspective of peer counselors who told their personal
stories impacted my attitude to be more positive and to have more hope in dealing with
patients. I got a lot of positive tools for being direct with patients about their test
results. 112
- It gave me a concise approach to dealing with counseling and testing
with patients here and it is now easier to approach everyone about the issues of HIV/AIDS.
I got the tools needed to neutralize patients' defensiveness. 113
- I was very moved by the training. Especially for my unit, it was an
important training. I used to be a case manager, and I am now a manager. I didnt
want to change. I wanted to stay in the HIV Task Force. I dont want to give that up.
122
- It changed the way I do things. I was not conscious that it was such
a widespread disease. Anyone could have it and you wouldn't know it. 128
- People now need to be tested. Everyone has to find out where they are
and their status to prevent the spread of the disease. 129
- I have a better knowledge of the disease and the different types of
treatment plans, and how to counsel someone with HIV. 136
- I became more aware and knowledgeable about HIV and the treatment of
HIV. 138
- It increased awareness. 142
- It showed me how to put my own feelings aside when teaching others
about HIV/AIDS. It allowed me to reach others with information and give them the
opportunity to see how they can educate themselves and others. 143
- It decreased categorizations and stereotypes of who should be tested
because anyone could have it. It made me more aware that its around us everywhere.
145
- The way the material was presented was very interactive. It showed
different approaches and used different people's perspectives. I liked the use of
different trainers. It cut down on the boredom and monotony of listening to the same
person speaking the entire time. 147
- I'm now more comfortable with HIV patients and more confident in the
information I provide them about their disease status. 150
- It makes me aware of the individuals as human beings. People have
different needs. They live in a diversified population with different needs and problems.
It was good for education. 155
- There was a large effect in service. 157
- Ive never really been afraid of AIDS. It helped encourage the
importance of helping people with HIV. A greater knowledge base results in greater patient
compliance. 164
- People go into health care to save lives, not to watch people die.
Now, with the different things that are being done for HIV/AIDS, a person can live with
the disease and have a quality of life. 165
- Before the training, I didn't know a lot about HIV treatment, lab
values, and what to look for. 166
- It should have an effect on me and the risks involved with HIV. 167
- I feel a little more sympathy for them. I used to not give a damn. I
used to feel it was a self-inflicted disease. Now I know that some could've helped it and
some couldn't, but they still need education, care, and someone to show some interest in
them. The training tried to help us give them more encouragement in their future and now
my outlook is better after I attended the training. 179
- I got a better idea of the transmission of the disease. I now know
that if I take precautions I can keep safe. I don't have to know the status of the
patient. I used to be scared. Now, I'm not. 181
- If I knew a person had HIV, I would be more scrupulous. I would feel
that I shouldn't get near this patient. After the training, I knew that you can't catch
HIV by touch or by smelling the same air. 187
- I am more relaxed. Im learning more. I'd like to focus on HIV
more in-service. 192
- Things are ever changing, so when you learn new things this knowledge
is always something that you can bring back to others. 194
- My understanding is better. 200
- I got information that I hadn't received before regarding the
complexity of the disease. The training explained the disease by breaking it down into the
different components so that it was easier to understand. 203
- It answered a lot of questions and alleviated a lot of the myths, and
made me really understand the facts about transmission. Now, I know that you cant
get HIV/AIDS from casual contact. People with HIV/AIDS don't bother me anymore now because
Im no longer keeping my distance from them. 204
- It educated me more knowing more about it. I always get so many
questions and I can answer questions right away without having to look them up. 208
- It made me realize that HIV could happen to anybody. 219
- The work has just begun. The training candidly included the
uniqueness of being a women and women's needs. Traditionally, that's not what happens at
trainings. 227
- It gave me a better perspective about the impact of the biases on
women. The training made us look at the change of the disease and who it's currently
affecting. 228
- I saw women becoming strong in the face of the disease. 230
- It made me a more compassionate and understanding person. 234
- We need to get peers to do the work, to do the outreach because
people trust them. They destroy the barriers, like I try to do in my work now. Every time
I go to the meetings, I always leave with something. It is one thing to get women in the
meetings in the first place. There is a thirst for more knowledge and to empower
themselves, especially in the section of the Ryan White planning group. Women have a
strong presence there. Before, men had a strong presence. This is the result of the
project. I just wish we could do the meetings more often. 235
- We learned at the training that women are a high-risk group. 236
- I've become more vocal about women's issues which has helped open
doors for women and made younger women more aware of their sexual habits. 238
- The fact that women are coming and getting together is good. The
training has brought unity and it has been a positive experience. It brought women in from
out of town. 239
- It increased my understanding and awareness of the issues that women
with HIV/AIDS face. 241
- Now I am more aware of and sensitive to issues my clients with HIV
face. 244
- It was interesting and new to be in a forum dealing with HIV issues.
The most powerful thing about the training was sitting next to women living with the
disease, which helped me to put things into perspective. 246
- I was impressed by the number of women who came out to the training.
The training helped break the illusion that women with HIV and children can't be mobilized
to do more. 251
No Effect "Didnt Make It Better or
Worse"
- It didn't change how I think about HIV because Ive always had
an open mind about it. 5
- We do quite a bit of that sort of work around here. It's not the best
format for my learning experience. 11
- I always thought that it was an unfortunate disease that some people
get. 21
- I felt that there was no formal training provided. 22
- My feelings are that the disease is pretty much the same regardless
of geography. The access to care is impacted, though. 23
- I'm up to my neck in it. It was centered around youth. There wasn't
information concerning the virus itself. It really didn't affect my view on HIV. It didn't
bring up prolonged medication options for HIV. It affected my thoughts on youth, though.
25
- There are some things that were new. It was more like a review. It
wasn't all new material to me. The material was appropriate to cater to a variety of
educational backgrounds. 26
- I feel the same about HIV-positive patients. I have already taken
care of them before. 33
- They basically taught the train of thought I already had. I trained
at the project. I picked up most of stuff through osmosis there. This was a nice
formalized version, though. 47
- I was already educated. 59
- I already had previous training and I have read a lot about HIV/AIDS.
73
- More awareness is a good thing, although the disease is devastating.
I can't rate the effect the training had on how I think about HIV because the positive and
negatives balance out. 90
- I have never had a fear of HIV. 91
- I was already open-minded about HIV, having worked in California
previously. 92
- I was well informed about HIV previously. 93
- The focus was on prevention techniques as opposed to the
"ABCs" of HIV. 94
- Its just something that I deal with. I would treat any
HIV-positive patient the same as my other patients. 95
- I didn't think I was provided with any new information. 96
- I was already well informed about HIV. 99
- I had a large exposure to HIV as a medical resident. 101
- I was already informed about HIV. 103
- I have always treated the patients the same way, just like they were
any other. I treated those who didn't have HIV in the same way. 106
- My brother had AIDS, so I was already sensitive to the issues and
knowledgeable about the disease. 109
- It only gave me better insight as to the different applications in
what to look for when evaluating patients. 110
- I was already familiar with issues of dementia and delirium and
differentiating between the two. 111
- I already had a lot of information on HIV/AIDS from previous
trainings at our hospital. 114
- I don't remember how the training affected how I think about HIV. 116
- I try to treat everyone the same. 117
- It changed the way I thought about mental health issues, not really
with HIV in particular, but rather mental health issues related to HIV. 118
- My feelings about patients with HIV didn't change drastically. 124
- It was just a refresher for what I already knew about HIV. 127
- It didn't impact a lot of new information to me. 130
- The training was excellent, but I have been working in it so long.
Those in the ages of 18 or so, the teenagers, found it useful. 133
- I was already well informed. 140
- I was sensitized before because I had previous formal training and
have treated HIV/AIDS patients in the past, so the training only highlighted existing
thoughts about HIV. 144
- I didn't get a whole lot of new information. I already knew most of
what was presented. 146
- I have had a lot training, so it wasn't brand new to me. If someone
who knew nothing were to attend the training, they would have learned something, but with
those who had a background, there was nothing new beyond the basics. It was very basic.
153
- My thoughts are still the same. I was just re-oriented with the
change in numbers and statistics pertaining to HIV. 159
- I had a lot of information already that I learned from one training
or another that I had previously attended. I didn't learn anything that I didn't already
know or hadn't already heard about. 172
- It just went along with my beliefs. It just reaffirmed beliefs. It
was a refresher. 175
- I've kept up with the data. It just reinforced what I already knew.
176
- I don't deal with many AIDS patients. I wanted to see how out of
touch I was with the problem and I enjoyed it. I thought it was informative, but I can't
remember the details. 177
- Every participant didn't come to session with the same amount of
knowledge. For most physicians, my response would apply. Physicians have previous exposure
to HIV. The training could provide additional information for non-physician-type
providers. I learned how to minimize risk for disease spread through vertical
transmission. 180
- I'm a real strong advocate of education. It just reinforced what I
already knew. 182
- I'm fairly aware of the contraction of AIDS and all issues
surrounding it. I have to be if Im in the field that Im in, and when I was a
lab technician. The training didn't make it worse or better. 185
- I had previous training. I have been in situations where we discussed
the issue of HIV. I have read literature and seen statistics. I typically see a lot of the
statistics of the city where I live. I got tidbits here and there. What I learned in the
training I had heard before. 193
- My attitude didn't change. 195
- I was open about it to begin with, and Im still open about HIV.
The training didn't affect my professional opinion. 196
- We were discussing individuals, and none if what the trainer
discussed influenced what I thought about HIV. 198
- I had the same feelings. I had gone through something like this
previously when I first started. 209
- I've already been working with HIV-positive patients for four years.
The training was a reminder. It didn't change my opinions. 210
- I've worked in AIDS service long enough. It didn't change my
perspective. 218
- If the training was more applicable to my area, it would be something
different. 222
- I can't even remember the training in that much detail. 224
- I already knew the information presented at the training. 229
- I didn't participate in the training. I was a service provider there.
231
- I wasn't pleased with the training because it wasn't very informative
and it didn't provide any new resources. 243
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